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Pediatric Asthma Study Info

Recruitment for Pediatric Asthma Clinical Study
Asthma is a common lung condition among children. Your child may already have the symptoms of asthma like coughing, wheezing and shortness of breath. Current asthma treatments don’t work well for every child. Clinical researchers are studying research treatments that may better control asthma in children. 

Pediatric Asthma Studies.

Local no-cost research studies enrolling kids ages 12–17 for #asthma.

 

Share Your Story: Marge Sudbay

My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine has been studied and doesn’t work. My daughter had this med IV for a few days several years ago with 2 wonderful weeks of relief. The truth is it was expensive & work comp doesn’t want to pay. My positive thoghts & prayers to each. Marge Sudbay…

 

Medicare #StepTherapy Rules

Step Therapy

Step therapy is a type of prior authorization. With step therapy, in most cases, you must first try certain less expensive drugs that have been proven effective for most people with your condition before you can move up a “step” to a more expensive drug. For instance, your plan may require you to first try a generic prescription drug (if available), then a less expensive brand-name prescription drug on its drug list, before it will cover a similar, more expensive brand-name prescription drug. However, if you’ve already tried the similar, less expensive drugs and they didn’t work, or if your prescriber believes that your medical condition makes it medically necessary for you to be on the more expensive step-therapy prescription drug, he or she can contact your plan to ask for an exception. If your prescriber’s request is

 

Respond to CDC proposed guidelines

Here is your chance to voice your opinion on how the PROPOSED CDC Guidelines may affect you as a pain patient who needs proper and timely access to care. (this link is the place to submit your comments), there is also a link on the CDC page that brings you to the guidelines, as well it might be a good idea to write your statement in a word document so that you dont lose it, as well as share it here on our page in the comment section on this post. ‪#‎ShareYourStory‬‪#‎RaiseYourVoice‬ ‪#‎MakeADifference‬

Dont forget to send your letter to the CDC… http://www.regulations.gov/#!submitComment;D=CDC-2015-0112-0001 #AccessToProperCare #MakeADifference #ShareYourStory

 

Here is POP President Barby Ingle’s submission:
National Center for Injury Prevention and Control
Centers for Disease Control and Prevention
4770 Buford Highway N.E., Mailstop F-63,
Atlanta, GA, 30341…

 

What is Central Pain Syndrome?

“What is Central Pain Syndrome?”
Central Pain Syndrome is a lifelong neurological disease of the Central Nervous System, which causes constant, unending, agonizing pain signals of all somatic types simultaneously. It is caused by lesions on the somatic pathways in the brain, brainstem, and/or spinal cord, which can be the result of disease or injury. There is presently no cure, and any treatments are few and of limited efficacy.

The current definition of Central Pain Syndrome given in the Introduction to the textbook “Central Pain Syndrome: Pathophysiology, diagnosis and management,” by Canavero and Bonicalzi (2 nd Edition, 2013) is: Spontaneous and/or evoked, anomalous, painful or non-painful, sensations projected in a body area congruent with a clearly imaged lesion impairing – transitorily or permanently – the function of the spinothalamoparietal thermoalgesic pathway.

Central Pain Syndrome as defined above has an estimated …

 

Share Your Story: Emily Ullrich

In hindsight, my chronic pain began at around eleven years old, when I started menstruating. My periods were so extremely painful that I would literally pass out from the pain. My mother had painful periods, and so my agony was chalked up to genes, and as I got older, I learned a few tricks to help the pain. As a teenager, I had regular pelvic pain and urinary tract infections, and by the time I was in college, I started seeking answers for my pain. I met endless doctors who shrugged me off with comments like, “You’re too young to have serious pain, I think you should just take Ibuprofen and use a heating pad,” and “It’s normal for women to have pain during their periods.” I continued to seek help over the next two decades, and finally, in my …

 

Twitter Chat on #Mindfulness

On July 29, 2015 the Power of Pain Foundation hosted a twitter chat on #Mindfulness with Dr Lynn Webster, M.D.and POPF President, Barby Ingle. Here is the highlights from the chat.

Power of Pain Foundation – Today we will be led by guest host @LynnRWebsterMD, talking all things #mindfulness & #PAIN, To start things off, @LynnRWebsterMD could you tell us a little about yourself?

Lynn Webster, MD
Thank you to @powerofpain for co-hosting today’s #TwitterChat on #mindfulness I am thrilled to be a part of this discussion. I’m Dr Lynn Webster, author of the book The Painful Truth, coming in Sept, about the need for empathy in #chronicpain care. I’ve been a #chronicpain doc for many years & have worked w/ many patients who have benefited by using #mindfulness techniques. I am grateful we have a platform to get together, …

 

Protecting Prescription Medications

Protecting Prescription Medications
by Barby Ingle, President
Power of Pain Foundation

• Do not request early refills or increase your dose of medication without discussing it with your provider
• Keep medications out of reach of children and pets, and use child proof caps
• Keep prescription medications away from teenagers and visiting guests (friends and family members have also been known to steal prescription drugs)
• Lost or stolen opioid medications are a red flag for possible abuse
• Open the container over a counter, away from the sink or toilet
• Participate in a drug-monitoring program such as the Patient Physician Trust Partnership. www.pptp.org
• Protect your supply as you would guard other valuables, such as a box with a combination lock
• The best place to store your medicine is in a cool, dry place in its …

 

The Power of Pain Foundation Article for PAINWEEK Journal

The Power of Pain Foundation Article for PAINWEEK Journal
2014 PAINWeek Journal (PWJ) Vol 2, Q 2 issue
By Barby Ingle

The mission of the Power of Pain Foundation (POPF) is to promote public and professional awareness of neuropathy conditions while educating those affected by the neuropathy pain, as well as their families, friends, and health care providers.  Our foundation also teaches patients to be self-advocates, promotes action-oriented awareness, and tries to improve pain care through activities and efforts that eliminate under-treatment.

POPF was created by Ken Taylor and the Ingle Family, because of their commitment to helping others, and because I didn’t get the proper or timely help I needed in dealing with reflex sympathetic dystrophy (RSD). The foundation evolved from a family discussion and morphed into a powerful communications vehicle. Each Thanksgiving, our family meets to discuss potential …

 

A Call for State Legislation to Support an Increase in Abuse Deterrent Formulations (ADF) Allowing Chronically Ill Pain Patients Better Access to Life Giving Medication

By Barby Ingle, Chairman
Power of Pain Foundation
facebook.com/powerofpain, twitter.com/powerofpain
5/8/2014

Over the past few years the conversations on opioid use have become more about the people abusing these medications and less about the patients who use them correctly. In the midst of abuse and diversion of prescription opioid medications, a negative spotlight is being shown to the public with attention on the health and societal consequences of what the abusers are doing with these medications. I propose we move the conversation of opioid use forward in a productive and positive patient health focus approach. We need to address restricting the access to those who are abusing their medications while keeping those who are in compliance from any penalty. We need to ensure the patients in pain have appropriate access to opioid analgesics.

Prescription opioid analgesics are an important …

 
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