Archive For: Conditions

How to Build a Strong Support Team

A Healthcare House: How to Build a Strong Support Team By Rachel Basso, Guest Blogger

I am going to share some tips on how to build a well-rounded support team that I have learned from my personal journey with Endometriosis and the resulting chronic pain. Your support team is there to make sure you don’t have to walk your health journey alone. I certainly wouldn’t have made it this far without the people and resources who were there to help me, and I advocate now so that no one else will have to!

When beginning to build your support team, first identify your key needs and then seek out the right person or resource to help solve that problem. I like to think of this process as building a house.

Let’s Build a House

Why a house? Well, you are …

 

Ulcerative Colitis Spotlight

What is Ulcerative Colitis?

  • Ulcerative colitis is a type of inflammatory bowel disease (IBD)
  • causes ongoing inflammation and small sores (ulcers) in the inner lining of the large intestine.
  • This inflammation makes the large intestine, or colon, empty frequently, which leads to the most common symptoms of colitis: diarrhea (often bloody) and abdominal cramps and pain.
  • The symptoms of ulcerative colitis, as well as possible complications, will vary depending on the extent of inflammation in the rectum and the colon.
  • Colitis symptoms can come on gradually or suddenly and vary in severity.

Is Colitis the same as Crohn’s Disease?

  • Ulcerative colitis is not the same as another IBD called Crohn’s disease.
  • Unlike Crohn’s disease, which can affect any area of the gastrointestinal (GI) tract, ulcerative colitis affects only the colon.
  • Colitis inflammation also differs from that of Crohn’s disease in
 

My Life Is Not My Own

My Life Is Not My Own
By: Michell Freeman

 

My name is Michell Freeman, I am from a small town in Bennettsville, South Carolina and this is my story. On November 4, 2013 I was in an automobile accident that involved a fatality. I was hit by a car that had ran a red light. I was unable to walk without great pain. When I arrived at the hospital my legs felt very cold and I had lost feeling in my saddle area and later down my left leg. The Doctor came in and told my family that I had a disc fragment that sequestered. The doctor told my husband that I was to lie flat on my back only to get up to use the restroom and if I lost control of my bowel or bladder to call …

 

Cushing’s Syndrome Clinical Study

Recruitment for Cushing’s Syndrome Clinical Study
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing’s Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’s Syndrome will be closely followed along with any signs of side effects.
Clinical trial for Cushing’s Syndrome is looking for volunteers. There is no placebo and the trial results are intended to be published. You can help make a difference. Learn more! t…
 

Pediatric Asthma Study Info

Recruitment for Pediatric Asthma Clinical Study
Asthma is a common lung condition among children. Your child may already have the symptoms of asthma like coughing, wheezing and shortness of breath. Current asthma treatments don’t work well for every child. Clinical researchers are studying research treatments that may better control asthma in children. 

Pediatric Asthma Studies.

Local no-cost research studies enrolling kids ages 12–17 for #asthma.

 

Study for severe to very severe COPD patients

New Study for People with Severe to Very Severe COPD

This research study is testing whether a new investigational drug that targets eosinophils (a type of white blood cell) could help patients with COPD (chronic obstructive pulmonary disease) control symptoms and reduce exacerbations (flare-ups) that lead to hospitalizations. The new investigational drug will be compared to oral and inhaled corticosteroids, the current standard of care for COPD.

More about the study:

  • The study drug (Benralizumab) is administered by Subcutaneous (under the skin) injection (SC).
  • There will be 3794 participants in this trial

If you are interested, please find the full study details and eligibility criteria listed here.

Eligibility Criteria:

Participants must:

  • be between 40 – 85 years old
  • have been diagnosed by a medical professional as having severe to very severe COPD
  • be a current smoker or former smoker
 

Share Your Story: Marge Sudbay

My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine has been studied and doesn’t work. My daughter had this med IV for a few days several years ago with 2 wonderful weeks of relief. The truth is it was expensive & work comp doesn’t want to pay. My positive thoghts & prayers to each. Marge Sudbay…

 

Share Your Story; Jan Marie Moore

After 15 years of suffering (docs cut a nerve in my c-spine during neck surgery), I have been diagnosed with CRPS. My spine is on fire 247. My body has atrophied terribly. I can barely walk or use my arms. Doc put me on Nucynta and a muscle relaxer. Its only helping a little. I’m 65 now, and frightened of the future. My head goes to dark places in the night. I saw 10 different doctors before this. All of whom called me “drug seeking” out of ignorance. The psychological damage they did to me is permanent, but for the sake of my family, I must press forward and try everything I can. I hope for all of our sake the medical community gets more savvy very soon! by JanMarieMoore…

 

Share Your Story: Ann Lavendar

I was diagnosed with RSD in January of 2002.  Since that time I’ve had more than 40 procedures, ranging from stellate blocks (both through my throat and the more dangerous procedure through my back and around my lungs), RFTC’s (radio frequency thermocoagulation blocks), exploratory surgery resulting in a vein wrap around a trapped nerve which seemed to be the culprit (complication following wrist surgery) and finally three tries at a dorsal column nerve stimulator (two fails and one semi-success).  It spread like wildfire during an especially bad exacerbation of symptoms, from my left hand/wrist, throughout the arm, my right arm,  across parts of my back and side, into my right hip and leg and across parts of my face.  The pain was so terrible that when I did fall asleep, I woke up clawing at my face and arms from …

 
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