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My XpertDox Experience

As a chronic pain patient with multiple autoimmune diseases for over 20 years now, I am constantly looking for new treatments, options, resources, clinical trials and providers who understand best what I am facing. I recently discovered a new resource that I want to share with my family, friends, providers, and other patient influencers. I have been attending and presenting at pain conferences since 2007 and know the top doctors treating Reflex Sympathetic Dystrophy (RSD), the options coming down the pipeline, the research and clinical trials and strengths and weaknesses of these providers.  So, when I registered and began to dive into XpertDox I looked up RSD first to compare their information to what I know as an extremely informed patient.

 

I personally went through 43 providers to get one who could diagnose me properly. I underwent many surgeries …

 

Voice Technology and the Chronic Pain Community

Voice Technology and the Chronic Pain Community by Beth Kotz

 

Voice-enabled technology, once little more than a clever novelty, is now on the verge of breaking through to playing a greater role in wellness and personal care. Computerized assistants attuned to human speech have been around in various forms since the 1950’s, but recent advances in artificial intelligence and machine learning have helped to “connect the dots” and build a stronger bridge between our spoken words and the actions of a computer. Experts are predicting that voice assistant platforms – such as Siri, Alexa, and Google’s Assistant – will be increasingly capable of helping improve at-home care management, and of enhancing a patient’s ability to communicate with providers, caregivers and family.

 

Voice as an Interface

 

Voice recognition technology is based on the concept of using the human …

 

How to Build a Strong Support Team

A Healthcare House: How to Build a Strong Support Team By Rachel Basso, Guest Blogger

I am going to share some tips on how to build a well-rounded support team that I have learned from my personal journey with Endometriosis and the resulting chronic pain. Your support team is there to make sure you don’t have to walk your health journey alone. I certainly wouldn’t have made it this far without the people and resources who were there to help me, and I advocate now so that no one else will have to!

When beginning to build your support team, first identify your key needs and then seek out the right person or resource to help solve that problem. I like to think of this process as building a house.

Let’s Build a House

Why a house? Well, you are …

 

Taylor Duane Interviews iPain President Barby Ingle for Thesis Paper

These answers were completed by Barby Ingle specifically for Taylor Duane’s senior thesis.

I’m investigating the question, “Should opiates used to treat cancer pain be rescheduled for cancer patients who are suffering from chronic pain?” What is your position on this and why?

International Pain Foundation (iPain) believes that all options should be on the table when it comes to treatment. That it should be between a provider and patient as to the goals of treatment and for some opiates will be right, for others it wont. But nothing should be taken off the table because we are all created differently and taking options away from patients because it doesn’t work for someone else is not access to proper and timely care for all.

 

What is your experience that informs that opinion?

I have been a chronic pain patient for …

 

Ulcerative Colitis Spotlight

What is Ulcerative Colitis?

  • Ulcerative colitis is a type of inflammatory bowel disease (IBD)
  • causes ongoing inflammation and small sores (ulcers) in the inner lining of the large intestine.
  • This inflammation makes the large intestine, or colon, empty frequently, which leads to the most common symptoms of colitis: diarrhea (often bloody) and abdominal cramps and pain.
  • The symptoms of ulcerative colitis, as well as possible complications, will vary depending on the extent of inflammation in the rectum and the colon.
  • Colitis symptoms can come on gradually or suddenly and vary in severity.

Is Colitis the same as Crohn’s Disease?

  • Ulcerative colitis is not the same as another IBD called Crohn’s disease.
  • Unlike Crohn’s disease, which can affect any area of the gastrointestinal (GI) tract, ulcerative colitis affects only the colon.
  • Colitis inflammation also differs from that of Crohn’s disease in
 

Reality Rally Fundraiser to help Michelle’s Place

Ken and Barby and Donny from Big Brother at Reality Rally 2016

Ken and Barby and Donny from Big Brother at Reality Rally 2016

Reality Rally Fundraiser to help Michelle’s Place w breast cancer patient resources. Reality Rally is the biggest gathering of Reality TV Celebrities in the country! And they are all coming to Temecula to help support a deserving charity; Michelle’s Place. #RealityRally #KenAndBarby #RealityTV.

iPain is proud to be a supporting funding sponsor for this awesome 2 day “Fun for Funds” event which attracts over 5,000 people has long life though the photos and press replays with the over 100 Reality Star who participate. The project reaches millions of consumers through traditional and digital media. The 120 Reality Stars come from 2 countries, 34 states and 81 cities. Each reality star must raise at least $500 for the Michelle’s Place Charity.

The multi-day event offers exhibitor opportunities, signage and

 

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF

by Barby Ingle

  1. Choose happiness.
  2. Create goals and more towards accomplishing them.
  3. Get involved in projects that you can be interested in and successfully complete.
  4. Keep yourself surrounded with happy people.
  5. Look at the bright side of challenges.
  6. Motivate yourself.
  7. Practice meditation and controlling your thoughts.
  8. Smile big and often.
  9. Visualize success.
  10. When anxiety and stresses are high, turn it over to God.

More about Barby can be found on her website

 

TIPS FOR CAREGIVERS WHEN IT COMES TO ASSESSING HOW THE PATIENT IS DOING

TIPS FOR CAREGIVERS WHEN IT COMES TO ASSESSING HOW THE PATIENT IS DOING – by Barby Ingle

  • Are they able to communicate?
  • Are they able to stay focused and remember things?
  • Are they frequently grimacing, crying, groaning, or otherwise indicating extreme distress?
  • Are they maintaining proper grooming practices?
  • Are they sleeping at night for the right number of hours?
  • Can they speak clearly and audibly and does what they say make sense?
  • Do they appear anxious or irritable?
  • Do they appear depressed?
  • Has their appetite increased or decreased, or have they gained or lost weight?
  • Have they increased use of tobacco or alcohol?
  • Have they maintained their relationships with family and friends?
  • Insomnia and poor sleeping cycles can result from being in a lot of pain.
 

New Year, New Goals

RESOLUTION: DEAL WITH YOUR CHRONIC PAIN THIS NEW YEAR
by Barby Ingle

If you’ve been living with chronic pain, New Year’s is the perfect time to make a few simple changes to increase positive daily living. Below Barby Ingle, explores tips for 2017 resolutions when you are the one in three Americans living in pain.

  1. Walk at least several times weekly. – Regular, low impact aerobic exercise reduces inflammation, strengthens your muscles and provides expedited healing by sending oxygen-rich blood through out your body. Depending on your individual level of fitness, you may want to start out walking only a few minutes at a time, and gradually—over a period of several weeks and maybe even months— try to walk for at least 30 minutes at least 3 or 4 times.
  2. Get at least eight hours of sleep each 24 hour
 
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