On September 17, 2021 at 8pm EST – On behalf of WHO’s #WorldPatientSafetyDay the International Pain Foundation and World Patients Alliance will be hosting a Webinar on Preventative Care for Newborns and Their Mothers. You can register here FREE to attend: REGISTER This is a virtual event.
Agenda
- Introduction
- Why is newborn and mother preventative care important to pain patient population?
- What is considered newborn preventive care?
- Prenatal
- Time of birth
- After birth
- How do you access newborn preventative care?
- Is there anything that is not included in newborn screening that I should be asking for?
- Whom do you ask?
- What should the mother do to prepare for the babies arrival?
- What does Affordable Care Act Expands Prevention Coverage for Women’s Health and Well-Being include?
- Where can I get care if I am outside the USA for my newborn?
Presenters:
Allison Bones, Ken Taylor, and Maiye Waller Mace Anthony Williamson Foundation
Allison Bones
Allison (D’Ambrosio) Bones is the President and CEO of T.E.A.M. 4 Travis (Together Ending Asplenia Mortality). Having experienced multiple losses in a 6-year period, including her premature infant twins, her father and her husband, she could have crumbled when Travis died too. Instead, she decided to attack the disease that claimed Travis. She focused on creating a foundation that would help prevent other families from losing a child to a disease no one knew existed. Allison earned a Bachelor’s of Business Administration from Baylor University. During a 13-year career at GE Capital, Allison held various roles, including Account Manager for a portfolio of Recreational Vehicle dealerships, each with a commercial credit line in excess of $10 million. Educational and professional experience combined with volunteer duties at Special Olympics, Salvation Army and the Boys’ and Girls’ Clubs inspired Allison to take on the challenge of founding a nonprofit. At T.E.A.M. 4 Travis, she has marketed the organization to her local community and been a champion for Rare Disease Advocacy. Her 2020 achievements include speaking at My City Med’s The Rare Fair, being nominated to Rare Disease Legislative Advocates newly formed Advisory Committee and earning the organization special recognition from Congresswoman Debbie Lesko for advocacy and awareness efforts. When not busy with T.E.A.M. 4 Travis, Allison enjoys travel, watching college football (especially her beloved Baylor Bears and Travis’ Texas Longhorns) and spending time with friends. Visit their website here: Team4Travis.org
Maiye Waller
My name is Maiye Waller, I am 27 years old and I am a survivor of infant loss. On 9/20/2017, I gave birth to my son Mace A. Williamson. I lost him due to a birth injury caused from a vacuum assisted delivery. From that day I promised to dedicate my life to him because his was taken. From that day I fought for peace and closure and the truth for four long years. In his honor, this year, I created the nonprofit organization called The Mace Anthony Williamson Foundation. The mission of the Mace Anthony Williamson Foundation is to give a voice to women and babies in my community and others by making sure they receive the most adequate maternal care and support during and after pregnancy. I will provide doulas to new qualifying mothers free of charge as a way of extending a strong support for them during and after pregnancy and/or perinatal loss. In time, I will fund a community support center that promotes mental health, provide any kind of support needed for women and families who have dealt with fetal death or babies in the NICU for extended stays I hope to encourage moms and families to share their stories of loss and to prevent another first-time mom and her newborn baby from suffering the way I and my Mace ultimately had to. My name is Maiye Waller and I am the Founder of The Mace Anthony Williamson Foundation and “We Are The Voice For Mothers and Babies”. Visit their website here: TheMAWFoundation.org
Ken Taylor
Ken Taylor is owner of My Genetic Meds. He is also iPain Living Magazine Digital Editor, Ken Taylor is a caregiver for his wife who lives with multiple chronic conditions. Ken is a chronic pain educator, patient advocate, and founder, Vice-President & Executive Director of the International Pain Foundation. Ken is the CEO and founder of Creating Patient Access Taskforce. He currently serves as an advisor for Johnson & Johnson Generation Care Program since 2019 and is a Dish Network Software Beta Advisor since 2015. He is a licensed sUAS pilot. He is also a motivational speaker and best-selling author on pain topics, graphic designer, and reality tv personality. Ken received the 2017 iPain Hero of Hope; Patient Awareness and 2017 Health Information Technology Top 100 Influencer. In 2018, 2019, & 2020, 2021 Ken was named to the top 50 advocates for the rare disease and chronic pain community. Visit their website Here: mygeneticmeds.com
Thank you to the following supporting event organizations –
World Patients Alliance – World Patients Alliance is the umbrella organization of patients and patients’ organizations around the globe. We seek to ensure that all patients have access to safe, high quality, and affordable healthcare everywhere in the world. Visit their website here: worldpatientsalliance.org
International Pain Foundation – The International Pain Foundation (iPain) is devoted to advancing access and quality care in order to help people suffering from a variety of muscular skeletal, inflammatory, neurological, emotional, degenerative and often rare conditions that involve chronic pain through education, awareness, and access to care projects.
