Share Your Story: Marge Sudbay

My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine has been studied and doesn’t work. My daughter had this med IV for a few days several years ago with 2 wonderful weeks of relief. The truth is it was expensive & work comp doesn’t want to pay. My positive thoghts & prayers to each. Marge Sudbay…


Share Your Story; Jan Marie Moore

After 15 years of suffering (docs cut a nerve in my c-spine during neck surgery), I have been diagnosed with CRPS. My spine is on fire 247. My body has atrophied terribly. I can barely walk or use my arms. Doc put me on Nucynta and a muscle relaxer. Its only helping a little. I’m 65 now, and frightened of the future. My head goes to dark places in the night. I saw 10 different doctors before this. All of whom called me “drug seeking” out of ignorance. The psychological damage they did to me is permanent, but for the sake of my family, I must press forward and try everything I can. I hope for all of our sake the medical community gets more savvy very soon! by JanMarieMoore…


Anesthesia vs Tranquilizers

Anesthesia vs Tranquilizers

Many people confuse Anesthesia and Tranquilizers so I thought I would research the topic and I learned a few things. Most of my information is from an anesthesiologist and a veterinary assistant. 

  • Anesthesia is a state of mindlessness (apathy, loss of sensation, medically induced insensitivity to pain)
  • Anesthesia is much more complex than just “putting out cold”
  • There are 3 fundamental components of a general anesthetic
    • sleep,
    • relief of pain
    • muscle relaxation
  • It is the skill of the Anesthesiologist to match the amount of each component to the particular needs of each patient and each operation
  • The mechanism of action of the anesthetics is one of those ongoing questions, but the most popular theory is that they cause a degree of swelling of the brain cell wall, which obstructs the normal passage of electrolytes in and

Nerve Injuries and the Fixed Dystonias of CRPS

Nerve Injuries and the Fixed Dystonia’s of CRPS
by: Mark S. Cooper, PhD, Department of Biology, University of Washington, Seattle, WA, USA

Type of Submission: Letter to Editor

Running Head: CRPS Fixed Dystonias

Nerve injury is a known precipitant of Complex Regional Pain Syndrome (CRPS). However, is nerve injury a primary cause of CRPS dystonia? In 2009, Oaklander and Fields(1) reviewed peripheral aspects of CRPS, asking whether diverse symptoms of this neuropathic pain disorder are linked to small‐fiber neuropathies. These authors also described a possible role for large‐fiber neuropathies in the etiology of CRPS fixed dystonias. This hypothesis adds a valuable new perspective to one of the most controversial topics in neurology: the fixed dystonias of CRPS.

During, and after, the American Civil War, Dr. Silas Weir Mitchell described both intense burning pain (causalgia) and fixed dystonias in a subset …

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