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My Life Is Not My Own

My Life Is Not My Own
By: Michell Freeman

 

My name is Michell Freeman, I am from a small town in Bennettsville, South Carolina and this is my story. On November 4, 2013 I was in an automobile accident that involved a fatality. I was hit by a car that had ran a red light. I was unable to walk without great pain. When I arrived at the hospital my legs felt very cold and I had lost feeling in my saddle area and later down my left leg. The Doctor came in and told my family that I had a disc fragment that sequestered. The doctor told my husband that I was to lie flat on my back only to get up to use the restroom and if I lost control of my bowel or bladder to call …

 

Mediaplanet features International Pain Foundation for pain month issue

We recently participated in Mediaplanet’s “Pain and Sleep Sensitivity” campaign where we united with like-minded industry leaders to educate the public on the importance of getting a good night’s sleep to mental, heart and immune system health. The campaign was distributed through USA TODAY on August 19th 2016 and is published online. For the full campaign, visit: http://bit.ly/2aUXGnX

 

Cushing’s Syndrome Clinical Study

Recruitment for Cushing’s Syndrome Clinical Study
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing’s Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’s Syndrome will be closely followed along with any signs of side effects.
Clinical trial for Cushing’s Syndrome is looking for volunteers. There is no placebo and the trial results are intended to be published. You can help make a difference. Learn more! t…
 

Body Butter Lotion Recipe

Are you having dry skin, irritated skin… one of our iPain Delegates swears by this family recipe her sister makes from home … here is the recipe! “The best lotion I have ever used it feels greasy but soaks in fast last 24 hrs.” -Tenah Callison

Body Butter

  • 1cup of Shea Butter
  • 1/2 cup coconut oil
  • 1/2 cup castor oil
  • any essential oils ex. lavender or vanilla
  1. Melt Shea butter and coconut oil in a double boiler.
  2. After melted set aside and cool for 30 mins mix in Castor Oil and any essential oils ex lavender or vanilla.
  3. After 30 minutes of cooling.
  4. Place in freezer for 20 mins for partial solidity.
  5. After removing from freezer whip until a butter like consistency is achieved.
 

Pediatric Asthma Study Info

Recruitment for Pediatric Asthma Clinical Study
Asthma is a common lung condition among children. Your child may already have the symptoms of asthma like coughing, wheezing and shortness of breath. Current asthma treatments don’t work well for every child. Clinical researchers are studying research treatments that may better control asthma in children. 

Pediatric Asthma Studies.

Local no-cost research studies enrolling kids ages 12–17 for #asthma.

 

Study for severe to very severe COPD patients

New Study for People with Severe to Very Severe COPD

This research study is testing whether a new investigational drug that targets eosinophils (a type of white blood cell) could help patients with COPD (chronic obstructive pulmonary disease) control symptoms and reduce exacerbations (flare-ups) that lead to hospitalizations. The new investigational drug will be compared to oral and inhaled corticosteroids, the current standard of care for COPD.

More about the study:

  • The study drug (Benralizumab) is administered by Subcutaneous (under the skin) injection (SC).
  • There will be 3794 participants in this trial

If you are interested, please find the full study details and eligibility criteria listed here.

Eligibility Criteria:

Participants must:

  • be between 40 – 85 years old
  • have been diagnosed by a medical professional as having severe to very severe COPD
  • be a current smoker or former smoker
 

Share Your Story: Marge Sudbay

My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine has been studied and doesn’t work. My daughter had this med IV for a few days several years ago with 2 wonderful weeks of relief. The truth is it was expensive & work comp doesn’t want to pay. My positive thoghts & prayers to each. Marge Sudbay…

 

Share Your Story; Jan Marie Moore

After 15 years of suffering (docs cut a nerve in my c-spine during neck surgery), I have been diagnosed with CRPS. My spine is on fire 247. My body has atrophied terribly. I can barely walk or use my arms. Doc put me on Nucynta and a muscle relaxer. Its only helping a little. I’m 65 now, and frightened of the future. My head goes to dark places in the night. I saw 10 different doctors before this. All of whom called me “drug seeking” out of ignorance. The psychological damage they did to me is permanent, but for the sake of my family, I must press forward and try everything I can. I hope for all of our sake the medical community gets more savvy very soon! by JanMarieMoore…

 

Share Your Story: Ann Lavendar

I was diagnosed with RSD in January of 2002.  Since that time I’ve had more than 40 procedures, ranging from stellate blocks (both through my throat and the more dangerous procedure through my back and around my lungs), RFTC’s (radio frequency thermocoagulation blocks), exploratory surgery resulting in a vein wrap around a trapped nerve which seemed to be the culprit (complication following wrist surgery) and finally three tries at a dorsal column nerve stimulator (two fails and one semi-success).  It spread like wildfire during an especially bad exacerbation of symptoms, from my left hand/wrist, throughout the arm, my right arm,  across parts of my back and side, into my right hip and leg and across parts of my face.  The pain was so terrible that when I did fall asleep, I woke up clawing at my face and arms from …

 

Medicare #StepTherapy Rules

Step Therapy

Step therapy is a type of prior authorization. With step therapy, in most cases, you must first try certain less expensive drugs that have been proven effective for most people with your condition before you can move up a “step” to a more expensive drug. For instance, your plan may require you to first try a generic prescription drug (if available), then a less expensive brand-name prescription drug on its drug list, before it will cover a similar, more expensive brand-name prescription drug. However, if you’ve already tried the similar, less expensive drugs and they didn’t work, or if your prescriber believes that your medical condition makes it medically necessary for you to be on the more expensive step-therapy prescription drug, he or she can contact your plan to ask for an exception. If your prescriber’s request is

 
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