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Share Your Story: Marge Sudbay

My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine has been studied and doesn’t work. My daughter had this med IV for a few days several years ago with 2 wonderful weeks of relief. The truth is it was expensive & work comp doesn’t want to pay. My positive thoghts & prayers to each. Marge Sudbay…

 

Share Your Story; Jan Marie Moore

After 15 years of suffering (docs cut a nerve in my c-spine during neck surgery), I have been diagnosed with CRPS. My spine is on fire 247. My body has atrophied terribly. I can barely walk or use my arms. Doc put me on Nucynta and a muscle relaxer. Its only helping a little. I’m 65 now, and frightened of the future. My head goes to dark places in the night. I saw 10 different doctors before this. All of whom called me “drug seeking” out of ignorance. The psychological damage they did to me is permanent, but for the sake of my family, I must press forward and try everything I can. I hope for all of our sake the medical community gets more savvy very soon! by JanMarieMoore…

 

Share Your Story: Ann Lavendar

I was diagnosed with RSD in January of 2002.  Since that time I’ve had more than 40 procedures, ranging from stellate blocks (both through my throat and the more dangerous procedure through my back and around my lungs), RFTC’s (radio frequency thermocoagulation blocks), exploratory surgery resulting in a vein wrap around a trapped nerve which seemed to be the culprit (complication following wrist surgery) and finally three tries at a dorsal column nerve stimulator (two fails and one semi-success).  It spread like wildfire during an especially bad exacerbation of symptoms, from my left hand/wrist, throughout the arm, my right arm,  across parts of my back and side, into my right hip and leg and across parts of my face.  The pain was so terrible that when I did fall asleep, I woke up clawing at my face and arms from …

 

Share Your Story: Emily Ullrich

In hindsight, my chronic pain began at around eleven years old, when I started menstruating. My periods were so extremely painful that I would literally pass out from the pain. My mother had painful periods, and so my agony was chalked up to genes, and as I got older, I learned a few tricks to help the pain. As a teenager, I had regular pelvic pain and urinary tract infections, and by the time I was in college, I started seeking answers for my pain. I met endless doctors who shrugged me off with comments like, “You’re too young to have serious pain, I think you should just take Ibuprofen and use a heating pad,” and “It’s normal for women to have pain during their periods.” I continued to seek help over the next two decades, and finally, in my …

 

Protecting Prescription Medications

Protecting Prescription Medications
by Barby Ingle, President
Power of Pain Foundation

• Do not request early refills or increase your dose of medication without discussing it with your provider
• Keep medications out of reach of children and pets, and use child proof caps
• Keep prescription medications away from teenagers and visiting guests (friends and family members have also been known to steal prescription drugs)
• Lost or stolen opioid medications are a red flag for possible abuse
• Open the container over a counter, away from the sink or toilet
• Participate in a drug-monitoring program such as the Patient Physician Trust Partnership. www.pptp.org
• Protect your supply as you would guard other valuables, such as a box with a combination lock
• The best place to store your medicine is in a cool, dry place in its …

 

The Power of Pain Foundation Article for PAINWEEK Journal

The Power of Pain Foundation Article for PAINWEEK Journal
2014 PAINWeek Journal (PWJ) Vol 2, Q 2 issue
By Barby Ingle

The mission of the Power of Pain Foundation (POPF) is to promote public and professional awareness of neuropathy conditions while educating those affected by the neuropathy pain, as well as their families, friends, and health care providers.  Our foundation also teaches patients to be self-advocates, promotes action-oriented awareness, and tries to improve pain care through activities and efforts that eliminate under-treatment.

POPF was created by Ken Taylor and the Ingle Family, because of their commitment to helping others, and because I didn’t get the proper or timely help I needed in dealing with reflex sympathetic dystrophy (RSD). The foundation evolved from a family discussion and morphed into a powerful communications vehicle. Each Thanksgiving, our family meets to discuss potential …

 

Invisible Diseases and Insurance Companies: Challenging and Preventing Insurance Denials

By Kantor & Kantor, LLP

Invisible diseases are often complex, mysterious, and complicated. Because of the ambiguous nature of these conditions, finding a diagnosis (or more than one diagnosis) can prove to be a difficult and prolonged process. Patients are faced with two challenges: (1) the internal suffering and symptoms they experience may not be acutely apparent to others, and (2) a precise cause, treatment, or test for these illnesses may not be exact. As a result, a patient may be faced with a number of differing opinions.

 

Unfortunately, many insurance companies use this uncertainty in diagnosis and treatment as an opportunity to deny claims for treatment. At Kantor & Kantor, we have represented scores of clients with invisible diseases such as Lupus, Arthritis, Fibromyalgia, and Chronic Fatigue Syndrome. These clients sought our assistance when their disability claims …

 

Anesthesia vs Tranquilizers

Anesthesia vs Tranquilizers

Many people confuse Anesthesia and Tranquilizers so I thought I would research the topic and I learned a few things. Most of my information is from an anesthesiologist and a veterinary assistant. 
Anesthesia

  • Anesthesia is a state of mindlessness (apathy, loss of sensation, medically induced insensitivity to pain)
  • Anesthesia is much more complex than just “putting out cold”
  • There are 3 fundamental components of a general anesthetic
    • sleep,
    • relief of pain
    • muscle relaxation
  • It is the skill of the Anesthesiologist to match the amount of each component to the particular needs of each patient and each operation
  • The mechanism of action of the anesthetics is one of those ongoing questions, but the most popular theory is that they cause a degree of swelling of the brain cell wall, which obstructs the normal passage of electrolytes in and
 

IV Ketamine Info

Ketamine Infusion Information
Information gathered by Barby Ingle, Power of Pain Foundation and based on her treatments as well as many other patients.

 Pre K-Infusion

  1. Testing
    1. Laboratory
    2. Cardiac
    3. Psychological evaluation
  2. Even with NO significant adverse events, administering doctors have been extremely cautious in screening patients with concurrent medical problems
  3. Most common reason a patient is eliminated is psychiatric history of note (apart from the depression due to chronic pain) and cardiopulmonary disease

Hospital-based infusions – Five-day in-patient stay

  1. An intravenous (iv) line is inserted and the patient
    1.  Dosing starts at 20mg of Ketamine per hour, which is increased by 5mg increments to a maximum of 40mg per hour
    2.  Clonidine, 0.1 mg (per FDA)
    3.  Lorazepam (Ativan®), 1-to-2 mg, for any dysphoria or hallucinations
    4.  Other medications are utilized to treat such problems as nausea and vomiting, headache etc.
  2. Adverse events that are
 
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