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My Life Is Not My Own

My Life Is Not My Own
By: Michell Freeman

 

My name is Michell Freeman, I am from a small town in Bennettsville, South Carolina and this is my story. On November 4, 2013 I was in an automobile accident that involved a fatality. I was hit by a car that had ran a red light. I was unable to walk without great pain. When I arrived at the hospital my legs felt very cold and I had lost feeling in my saddle area and later down my left leg. The Doctor came in and told my family that I had a disc fragment that sequestered. The doctor told my husband that I was to lie flat on my back only to get up to use the restroom and if I lost control of my bowel or bladder to call …

 

Share Your Story: Marge Sudbay

My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine has been studied and doesn’t work. My daughter had this med IV for a few days several years ago with 2 wonderful weeks of relief. The truth is it was expensive & work comp doesn’t want to pay. My positive thoghts & prayers to each. Marge Sudbay…

 

Respond to CDC proposed guidelines

Here is your chance to voice your opinion on how the PROPOSED CDC Guidelines may affect you as a pain patient who needs proper and timely access to care. (this link is the place to submit your comments), there is also a link on the CDC page that brings you to the guidelines, as well it might be a good idea to write your statement in a word document so that you dont lose it, as well as share it here on our page in the comment section on this post. ‪#‎ShareYourStory‬‪#‎RaiseYourVoice‬ ‪#‎MakeADifference‬

Dont forget to send your letter to the CDC… http://www.regulations.gov/#!submitComment;D=CDC-2015-0112-0001 #AccessToProperCare #MakeADifference #ShareYourStory

 

Here is POP President Barby Ingle’s submission:
National Center for Injury Prevention and Control
Centers for Disease Control and Prevention
4770 Buford Highway N.E., Mailstop F-63,
Atlanta, GA, 30341…

 

Raising Awareness, Building Community by Stephanie Christianson

Raising Awareness, Building Community
Stephanie Christianson

The Juvenile Diabetes Research Foundation (JDRF) hosted a series of two 5k challenges here in Atlanta, Georgia. My family and I participated in last year’s 5K held on the 19th at Verizon Amphitheater in Alpharetta, GA, my hometown. We participated in this event because of my younger brothers who are both Type I Diabetics (T1D). My family does not have a family history of this particular disease; moreover, they were diagnosed in an atypical pattern. My youngest brother was the first to be diagnosed at the ripe age of 13, approximately three years later my other brother was diagnosed. It is also important to note I was 18 months into my diagnosis of Chronic Regional Pain Syndrome in my left leg.

While my brothers and I deal with two different chronic illnesses, there is …

 

Twitter Chat on #Mindfulness

On July 29, 2015 the Power of Pain Foundation hosted a twitter chat on #Mindfulness with Dr Lynn Webster, M.D.and POPF President, Barby Ingle. Here is the highlights from the chat.

Power of Pain Foundation – Today we will be led by guest host @LynnRWebsterMD, talking all things #mindfulness & #PAIN, To start things off, @LynnRWebsterMD could you tell us a little about yourself?

Lynn Webster, MD
Thank you to @powerofpain for co-hosting today’s #TwitterChat on #mindfulness I am thrilled to be a part of this discussion. I’m Dr Lynn Webster, author of the book The Painful Truth, coming in Sept, about the need for empathy in #chronicpain care. I’ve been a #chronicpain doc for many years & have worked w/ many patients who have benefited by using #mindfulness techniques. I am grateful we have a platform to get together, …

 
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