A Call for State Legislation to Support an Increase in Abuse Deterrent Formulations (ADF) Allowing Chronically Ill Pain Patients Better Access to Life Giving Medication

By Barby Ingle, Chairman
Power of Pain Foundation
facebook.com/powerofpain, twitter.com/powerofpain

Over the past few years the conversations on opioid use have become more about the people abusing these medications and less about the patients who use them correctly. In the midst of abuse and diversion of prescription opioid medications, a negative spotlight is being shown to the public with attention on the health and societal consequences of what the abusers are doing with these medications. I propose we move the conversation of opioid use forward in a productive and positive patient health focus approach. We need to address restricting the access to those who are abusing their medications while keeping those who are in compliance from any penalty. We need to ensure the patients in pain have appropriate access to opioid analgesics.

Prescription opioid analgesics are an important …


What things can you do to ensure better healthcare?

I often reflect back on my experiences over the past 11 + years and know that I want my future healthcare to be better than my past. I have been putting a lot of thought into what I could of done better or things I wish I knew then that I know now… Here are my top 5 tips for others trying to navigate the minefield of the health system. First, communication with my health team. Now I have a great health team but it wasn’t always that way. Find out from your provider what they would like you to do if you have an emergency. My provider has asked me to call him and let him know I am on my way to the hospital and has even suggested specific hospitals so that if I am admitted he has …


What to ask my provider or pharmacist about the medication I take?

Once a provider gives you a medication as them some questions… and then ask those same questions to your pharmacist. Really get to know the medication that you will be taking and why. It can save your life!

What should you ask?

  1. Why are you prescribing this medication for me?
  2. How often should I take it?
  3. Do I eat prior to taking it, or should I wait on food for a particular amount of time after I take it?
  4. How do I take it? Is is oral, swallow whole, chew-able, drops under my tongue, or inhaled, etc…?
  5. What are the possible side effects and what do I do if I experience any of them?
  6. What should I do if I miss a dose?
  7. What should I do if I feel I need to take a dose early, is that ok?

Invisible Diseases and Insurance Companies: Challenging and Preventing Insurance Denials

By Kantor & Kantor, LLP

Invisible diseases are often complex, mysterious, and complicated. Because of the ambiguous nature of these conditions, finding a diagnosis (or more than one diagnosis) can prove to be a difficult and prolonged process. Patients are faced with two challenges: (1) the internal suffering and symptoms they experience may not be acutely apparent to others, and (2) a precise cause, treatment, or test for these illnesses may not be exact. As a result, a patient may be faced with a number of differing opinions.


Unfortunately, many insurance companies use this uncertainty in diagnosis and treatment as an opportunity to deny claims for treatment. At Kantor & Kantor, we have represented scores of clients with invisible diseases such as Lupus, Arthritis, Fibromyalgia, and Chronic Fatigue Syndrome. These clients sought our assistance when their disability claims …


Power of Pain Foundation partners on WEGO Health Activist Awards

We wanted to take a moment today to let you know that Power of Pain Foundation has recently partnered with WEGO Health to share their Third Annual WEGO Health Activist Awards.

WEGO Health is an online network comprised of Health Activists – leaders and influencers within the online health community – and they’ve put together the Health Activist Awards to recognize and reward those who have made a different in the last year.  We want to make sure that the chronic care diseases involving nerve pain community gets the recognition it deserves and are hoping you’ll take a moment to nominate all of the patients, caregivers, and Health Activists who have made a difference in your life this year.

You can nominate here: http://bit.ly/19WRSWA

The WEGO Health Activist Awards program has a category for everyone so don’t be shy – …


How to Apply for Disability Benefits with Complex Regional Pain Syndrome

How to Apply for Disability Benefits with Complex Regional Pain Syndrome


While Complex Regional Pain Syndrome (CRPS) can be debilitating and prevent you from working, particularly when not diagnosed quickly. The SSA currently does not recognize CRPS in its manual of conditions that qualify for disability. That does not however mean that you cannot get Social Security Disability (SSD) benefits if your CRPS is so severe that it prevents you from working.

Qualifying Medically for SSD with CRPS

Proving disability with a chronic pain disorder can be challenging, but it is possible to be approved for disability benefits based on CRPS. The SSA typically requires extensive medical evidence to gain disability benefits, and a diagnosis of CRPS will require you have very specific evidence to support your claim for benefits.

The SSA will first need to establish that you …


great non profits

The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more.

Watch The Newest Quilt Come Together 1 Square At A Time

All squares sent in to be dedicated to the Quilt Project will be added to the slideshow for everybody to view. To all that participate in the quilt project, our goal is to make this a part of yours as much as it is a part of ours and we thank you all.



Anesthesia vs Tranquilizers

Anesthesia vs Tranquilizers

Many people confuse Anesthesia and Tranquilizers so I thought I would research the topic and I learned a few things. Most of my information is from an anesthesiologist and a veterinary assistant. 

  • Anesthesia is a state of mindlessness (apathy, loss of sensation, medically induced insensitivity to pain)
  • Anesthesia is much more complex than just “putting out cold”
  • There are 3 fundamental components of a general anesthetic
    • sleep,
    • relief of pain
    • muscle relaxation
  • It is the skill of the Anesthesiologist to match the amount of each component to the particular needs of each patient and each operation
  • The mechanism of action of the anesthetics is one of those ongoing questions, but the most popular theory is that they cause a degree of swelling of the brain cell wall, which obstructs the normal passage of electrolytes in and

IV Ketamine Info

Ketamine Infusion Information
Information gathered by Barby Ingle, Power of Pain Foundation and based on her treatments as well as many other patients.

 Pre K-Infusion

  1. Testing
    1. Laboratory
    2. Cardiac
    3. Psychological evaluation
  2. Even with NO significant adverse events, administering doctors have been extremely cautious in screening patients with concurrent medical problems
  3. Most common reason a patient is eliminated is psychiatric history of note (apart from the depression due to chronic pain) and cardiopulmonary disease

Hospital-based infusions – Five-day in-patient stay

  1. An intravenous (iv) line is inserted and the patient
    1.  Dosing starts at 20mg of Ketamine per hour, which is increased by 5mg increments to a maximum of 40mg per hour
    2.  Clonidine, 0.1 mg (per FDA)
    3.  Lorazepam (Ativan®), 1-to-2 mg, for any dysphoria or hallucinations
    4.  Other medications are utilized to treat such problems as nausea and vomiting, headache etc.
  2. Adverse events that are
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